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Stay up-to-date with neuroendocrine cancer news, educational information, monthly newsletters and ways to connect with other neuroendocrine cancer patients and caregivers.

Make a Difference

Donate today and help us  provide support, and information on diagnosis, treatment options, research, and resources for NET patients and caregivers.

ABOUT THE NEUROENDOCRINE CANCER FOUNDATION

The Neuroendocrine Cancer Foundation provides a community of support and education for neuroendocrine tumor (or neuroendocrine cancer or NET) patients and caregivers.

Learn

Our educational programs, including webinars, patient education conferences, a video library, podcast, and blog, provide information on diagnosis, treatment options, research and resources. We develop patient-friendly educational content that brings the latest medical information and research studies to NET patients and caregivers.

Advocate

We advocate for all people impacted by this rare disease to improve health outcomes through early diagnosis. We raise awareness about neuroendocrine and carcinoid cancers among healthcare professionals and the public.

Connect

Our inclusive global community includes NET patients, family members, and caregivers. The Neuroendocrine Cancer Foundation makes it possible for patients to share experiences, encouragement, and hope through support groups, Health Coaching, and NETCONNECT, a buddy program connecting a newly-diagnosed NET patient with a long-time patient.

Seven Facts About NET

  • Neuroendocrine cancer is also known as neuroendocrine tumor, or NET.

  • NET is a rare cancer. In the United States, 7 in 100,000 people are diagnosed per year. 

  • NET can affect neuroendocrine cells throughout the body.

  • NET is a difficult cancer to diagnose.

  • Some (but not all) NET patients have symptoms from their cancer.

  • The cause of NET is unknown.

  • Seeking the opinion of a NET specialist is important for all NET patients.

LATEST ON CLINICAL TRIALS

LATEST FROM NCF

RECENT EDUCATIONAL EVENTS 

"Large Cell Neuroendocrine Carcinoma & Small Cell Lung Cancer" • Session B • LACNETS • Dec 10, 2024
01:28:05

"Large Cell Neuroendocrine Carcinoma & Small Cell Lung Cancer" • Session B • LACNETS • Dec 10, 2024

This is a 2-session comprehensive guide to lung neuroendocrine cancers. Session A covers Typical Carcinoids and Atypical Carcinoids. Watch Session A here: https://youtu.be/owZRDf3ISM4 Session B covers Large Cell Neuroendocrine Carcinoma and Small Cell Lung Cancer. ABOUT AMAN CHAUHAN, M.D. Aman Chauhan, MD, earned his medical degree from the Kasturba Medical College in Manipal, Karnataka, India, followed by a dual residency in internal medicine and pediatrics at Louisiana State University in New Orleans. Dr. Chauhan completed his fellowship in hematology and oncology at the University of Kentucky, especially focusing on neuroendocrine tumor (NETs). Additionally, Dr. Chauhan completed a Cancer Therapy Evaluation Program (CTEP) physician externship at the National Cancer institute (NCI) that focused on designing clinical trials and clinical research projects. His clinical interests include treating NETs, including carcinoid tumors, high-grade neuroendocrine carcinomas, and small and large cell neuroendocrine carcinoma. Dr Chauhan leads the University of Miami Neuroendocrine Cancer Program and co-leads Sylvester Theranostics Drug Development Program. He is national principal investigator on several investigator initiated neuroendocrine cancer clinical trials. He has authored over 70 scientific publications and book chapters and has received a career development award from NCI CTEP. Dr Chauhan also serves on AJCC and ASCO NET guideline committees and is an active member of NANETS communication committee. Dr. Chauhan is board certified in internal medicine and medical oncology. He is a member of the American Society of Clinical Oncology as well as the American Association of Cancer Research and the North American Neuroendocrine Tumor Society. For more information, visit LACNETS.org.
"Typical Carcinoid & Atypical Carcinoid" • Session A • LACNETS Event • Dec 10, 2024
01:33:36

"Typical Carcinoid & Atypical Carcinoid" • Session A • LACNETS Event • Dec 10, 2024

This is a 2-session comprehensive guide to lung neuroendocrine cancers. Session A covers Typical Carcinoids and Atypical Carcinoids. Session B covers Large Cell Neuroendocrine Carcinoma and Small Cell Lung Cancer. Watch Session B here: https://youtu.be/LxXdXMKpaCo ABOUT AMAN CHAUHAN, M.D. Aman Chauhan, MD, earned his medical degree from the Kasturba Medical College in Manipal, Karnataka, India, followed by a dual residency in internal medicine and pediatrics at Louisiana State University in New Orleans. Dr. Chauhan completed his fellowship in hematology and oncology at the University of Kentucky, especially focusing on neuroendocrine tumor (NETs). Additionally, Dr. Chauhan completed a Cancer Therapy Evaluation Program (CTEP) physician externship at the National Cancer institute (NCI) that focused on designing clinical trials and clinical research projects. His clinical interests include treating NETs, including carcinoid tumors, high-grade neuroendocrine carcinomas, and small and large cell neuroendocrine carcinoma. Dr Chauhan leads the University of Miami Neuroendocrine Cancer Program and co-leads Sylvester Theranostics Drug Development Program. He is national principal investigator on several investigator initiated neuroendocrine cancer clinical trials. He has authored over 70 scientific publications and book chapters and has received a career development award from NCI CTEP. Dr Chauhan also serves on AJCC and ASCO NET guideline committees and is an active member of NANETS communication committee. Dr. Chauhan is board certified in internal medicine and medical oncology. He is a member of the American Society of Clinical Oncology as well as the American Association of Cancer Research and the North American Neuroendocrine Tumor Society. For more information, visit LACNETS.org.

LATEST PODCAST EPISODES 

Episode 41 - Top 10 Highlights of the 2024 NANETS Symposium - Square Flyer.png
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Episode 38 - NEN Treatments Part 1.png

RESOURCES & INFORMATION FOR YOU

Quotation Marks

I was officially diagnosed on June 29, 2022. I didn’t even know NETs existed. And today...less than a month later, I’ve learned so much thanks to the incredible resources that exist as a result of the beautiful NETs community. The resources available, especially the videos from the (Neuroendocrine Cancer Foundation) and the NET VITALS document, are so life-giving and helpful for the newly diagnosed. The Neuroendocrine Cancer Foundation contributes so much useful information to the NET community.

— NET Patient

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